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mommy blogger. As a mother that has suffered the loss of multiple children while becoming a mother of the bride to our oldest, raising 2 young adults, an 8 year old preemie and a 6 year old tornado, I have a lot to share. I can't guarantee you will agree with everything I say, but I think you may just enjoy it. This is our life, the good, bad and ugly. 
When we brought Allison home from the hospital, she was just 2oz. bigger than Marlo is right now! Wow!
There has been a lot of growing going on, that and eating! She stores her stools for once a day massive blow outs now, and has earned her right to a trip to the sink for a hose down. Literally, up to her armpits in a stinky mess that could clear an entire room. Clothes have been ruined!
She is having less B's and D's (bradycardia and desaturation), and still having some A's occasionally (apnea).
Her feedings are going well, and she is taking about 50% of the 45cc's she gets every 3 hours. Sometimes she takes the whole bottle, and other times half. When she is too tired it goes through a gavage tube. Over all the feeding is going well, but there is room for improvement in all these areas. Improvement is essential in order for them to utter the word we long to hear....HOME.
Please keep praying. The closer we get, the further away it seems.