Gonna give it another Go, and new News

They want to try it again.  And of course much sooner than I expected.  Either tomorrow or the next day they are going to extubate Marlo, again.

I know they have to try, but, I am apprehensive about this.  Since being re-intubated this week, Marlo hasn't had very much weight gain, and had lost weight from burning so many calories while she worked so hard to breathe on her own more.

My thinking is this:  If she lost weight last time, and hasn't gained very much back, wouldn't that mean she will lose more weight this time, knocking her even further back than she was before?  UGH.  I just want so badly for her to get chubby, and at this rate, it will take awhile.  She has only been gaining 5 grams a day for the past week.  As of yesterday she was almost back to her 2lb 1oz weight.  At the rate she was gaining the week before she would have been closer to 2lb 6oz or so.  Weight gain is a pretty big deal for such a little tiny girl.  I will be praying so hard this week that she does well on her new ventilation and can graduate to just a nasal cannula very soon there after, and that she doesn't lose weight and continues to gain.  It's hard to hold her skin to skin with this form of ventilation, since she can't lay on her tummy.  She will have tubes at the sides of her head making it difficult to lay on her sides...she needs to "FLY" as they call it so they can graduate her to the next step.

As of yesterday, Miss Marlo is 4 weeks old!  Tuesday marks one month for her, that is a really big deal.  Well, lets face it, Marlo is a Pretty Big Deal.   :)

In other news, we have some other major changes happening around here.  Jake will be heading to Australia for work in the next couple of weeks.  We will slowly be transitioning our family to the Land Down Under.  This is going to be tough for us, to not have Daddy here.  Even more tough on Daddy not to be here.  I don't know when the kids and I will be able to go, it could be a while.  For now we move forward with the kids going to school here, and being here until Marlo is well enough to travel.  Who knows when that will be.

So there you have it.  The scoop from us always has something of interest and change.  We live a wild and crazy life.  Who knew when I named  my blog "This crazy thing called Life", I would have so much material.

Never a dull moment around here.